At this point in time, I really have nothing to hope for. As we get ready to go and take a functional MRI test, I don’t know, what to even want to come from it.
Do I hope for her AVM to be in a location that isn’t on a critical center so she can have brain surgery to completely eradicate it? Do I hope for a huge scar, time spent in ICU, the restrictions and possible things that could go wrong? Is this what I hope for?
Do I hope for her AVM to be in a location that IS on a critical center so she can’t have brain surgery and must do the radiation therapy? Putting her through radiation that may or may not work and has only an 80% chance of eradicating it. Of course the side effects and all the possible things t hat could go wrong? Is that what I hope for?
It is a scary time when you really have nothing to hope for and just go with the flow. My family hopes for brain surgery, I don’t hope for anything other than there to be a huge mistake and she really doesn’t have a problem. Unfortunately, that theory has been debunked many times, so I have nothing to hope for.